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Leon's Story

Leon is the face of this year’s Sweetheart Day campaign.

The Mizzi family in Springfield Lakes, Queensland gave birth to baby Leon in 2015. Prior to being born, Leon was diagnosed with multiple forms of congenital heart disease after it was revealed his heart was showing on the wrong side during an eighteen week scan.

Following his birth, Leon showed signs of distress; he was turning blue, had difficulty feeding and required a tube. At just two days old he underwent the first of three open heart surgeries (a BT shunt to increase blood flow to the lungs).

More surgeries continued during his infancy at Queensland Children’s Hospital where at four months old he underwent a cardiac catheter lab and at six months old another open heart surgery (biredirectional glenn) to improve his cardiac function. When Leon reached the age of four, in May 2019, he required another surgery requiring a cardiac catheter lab and in July of that year underwent a series of complex procedures including a fontan, glenn augmentation, left pulmonary artery augmentation and stent surgeries.

Leon is now five years old and has a larger-than-life personality, maintaining his cheeky smile while displaying enormous courage throughout his fight for life. His first two years involved multiple periods of feeling unwell yet he remains brave and strong.

Eight babies are born with a heart condition in Australia every day. Almost 3,000 every year. Leon is one of them. Undergoing heart surgery is not a cure - children with congenital heart disease will face unique challenges for the rest of their lives and for many, this includes ongoing medical treatment and repeated heart surgeries.

This Sweetheart Day, join us in the fight against congenital or childhood acquired heart disease and help raise awareness and funds.

Fundraise for us 

13 December 2020
Category: Ambassadors
Tags: #congenitalheartdisease #chd #chdawareness #heartkid #shdambassadors #sweetheartday,
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